Monday, July 9, 2012

Life From Here. BFTD July Update

It’s been a while but I don’t have a lot of info. My last PSA showed a reduction, albeit slight.

I had labs today and no frantic calls so I must be good.

I try to carry a cane sometimes to avoid a fall. I’ve never been hurt but it could happen.  My legs are getting weaker.

Ya know this may get ugly as time goes by.  I've already had a few people ask to be taken off the list.  Let me know.

Last week my labs showed my red blood cells dangerously low (notice how they always say “dangerously low”). Well, I needed to get an infusion. Two bags, 2 hours a bag. I guess I have been sheltered in the sterile and clear world of plasma…they brought out real blood….it was red and in a bag….It was like a scene from Twilight! I thought it was kinda creepy…..Sure made me feel better though.

My best week is the 3rd week after treatment. It’s not so great anymore but still better than the first 2 weeks.

My greatest current concern is my weight loss. I’m holding steady at 152-158 depending on what I’m wearing but the appliance that had plugged the hole from my mouth to my nose is no longer effective.

I’ve mentioned before that I’ve never been a Smoothie kinda guy….and, the protein is “Curds and Whey”. But, I had to do something so I looked for a nose plug that would allow me to drink milkshakes and Smoothies though a straw….not an easy task. I did find something, ear plugs…the problem was the size that fit my nose…are blue. So if you see me drinking anything through a straw, my nostrils will probably be blue. Kinda match my eyes but still not a good look.

The two friends I stay with at the beach both live across the street from the water but the deep sand can sometimes present a challenge. One house is a block down from a very nice Public Walkway. It has a bridge over the deep sand and a ramp so it’s easy to walk across. The challenge is the parking. Plenty of spaces but people get there early….and all the spaces are gone. So Friday morning I decided to get up early grab a biscuit and go get a parking space….I went to Hardees and I ate most of it. I then went to the Public Parking and as the only one there I backed into the first space next to the Beach to await my friends. My 12-year old ultimate driving machine has seats that will go completely horizontal so I laid all the way back, windows cracked I could hear the waves, the seagulls and smell the salt air…I almost dosed……that was when I first saw…the Cop!….He was a Grizzly looking fella about 9 feet tall. From my back seat perspective he looked like a right angle peering into my car. As I began raising the seat..I was real glad there was no “anti-nausea” medicine on the dash but I was also real glad I didn’t have blue nostrils. “You’re not allowed to sleep in your car sir” He boomed. Well, I’m just saving a space and waiting for my friends I said….I even showed him the biscuit receipt that proved I was at Hardees at 6:15. He seemed satisfied and walked back to his car, which he had also backed in right next to me, and began doing paperwork on his computer.

It was hard to tell if he actually got into his car or "put it on"…he was so big!

So he’s there doing paperwork and next door I’m taking all the pain, steroids and other drugs I take to make the day work….must have been quite a site.

I’m still waiting for the FDA to approve the latest and greatest drug. I’m not too optimistic but can and do have hope. I’m still in this fight!

Family is Family and most family members will, at the end of the day, stick by you and love you…they’re family.

Friends however are chosen on merit and mutual respect. You can’t choose your family but you can choose your friends and I must say…I have so many and my 5-finger friends are there for me.

One of my friends emailed me that a friend will help you move….a 5-finger friend will help you move a dead body! Bizarre but the truth!

Keep the Spiritual Lights and Prayers coming! It’s worked so far. Bob









1 comment:

  1. so you managed to squeeze drugs, cops and dead bodies into one blog...Bravo! Hope the beach is good. have some mail her for you but nothing pressing. Spartan warrior is a nice touch too.

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