Wednesday, August 22, 2012

Life From Here. Update to the Update

Whoa! I guess the Hospice comment freaked out everybody (including me). I kinda think the Doc mentioned it for general daily care vs. end of life counseling.

Granted, I would have rather he had said call “Acme Nursing” or something other than Hospice but judging from the responses I got my last post seemed to make everyone feel as if the Priest was there, I had tubes coming out my nose, and probably wouldn’t see Labor Day! Hell it weren’t for my leg I was planning to go to the beach Labor Day!

I’m still very optimistic that the new drug will do something. It was developed for men that are where I am in the process which is rare…most are developed for newly diagnosed patients. It just needs to get final approval by the FDA which they now are saying may be November. There is the possibility that they will allow certain patients to get the drug before then for humanitarian purposes. The drug is called Motivnia.(sp) If anyone has influence with the FDA please see it you can kick a few desks around and find out what’s up.

I appreciate the outpouring of support. The bottom line here is I don’t plan on going anywhere; I’ve already out lived 6 people on my list. I just relayed where things stand.

I hope to have my phone and email back to normal within the next week and can be more responsive.

Again, thanks for the Spiritual Energy and Prayers!  Bob



1 comment:

  1. Go get em Bob...coming by to see you this week to catch up.

    ReplyDelete